cystic fibrosis

6, 5, and 2

Each day I am reminded of gratitude.

Amazement.

Even being thankful for all the quirky things in life.

I went to my f/u CF appointment last week and I gained 6 pounds and my PFTs went up 5%.

I have been working at gaining weight, but in the past it has been difficult to gain 3 pounds.  And you can’t gain 5% of lung capacity out of nowhere.  I haven’t done any more than I normally do.  I have been increasing my exercise, but that has only been in the last 2-3 weeks consistently.

Healthy people lose 1-2% of their lung capacity a year after a certain age, I will say 60 – as we get older.

I keep telling people that I feel like I have gained 9 months to a year back of my life.  I have been on the medication for 6 months and it seems as if time is literally reversing.  I am feeling stronger, overall have more energy, and seem to rebound quicker.

My doctor confirms that I seem to be having a positive response to the medication, which is great for me but there is real data being built and that can change that many more lives. 

It is hard to absorb, and give, and take in all this stuff.

Ease and grace. Two of my favorite words as of late.

Ease into it and grace is what becomes of it.

 

 

 

 

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