6, 5, and 2

Each day I am reminded of gratitude.

Amazement.

Even being thankful for all the quirky things in life.

I went to my f/u CF appointment last week and I gained 6 pounds and my PFTs went up 5%.

I have been working at gaining weight, but in the past it has been difficult to gain 3 pounds.  And you can’t gain 5% of lung capacity out of nowhere.  I haven’t done any more than I normally do.  I have been increasing my exercise, but that has only been in the last 2-3 weeks consistently.

Healthy people lose 1-2% of their lung capacity a year after a certain age, I will say 60 – as we get older.

I keep telling people that I feel like I have gained 9 months to a year back of my life.  I have been on the medication for 6 months and it seems as if time is literally reversing.  I am feeling stronger, overall have more energy, and seem to rebound quicker.

My doctor confirms that I seem to be having a positive response to the medication, which is great for me but there is real data being built and that can change that many more lives. 

It is hard to absorb, and give, and take in all this stuff.

Ease and grace. Two of my favorite words as of late.

Ease into it and grace is what becomes of it.

 

 

 

 

Little Dreamer

The world is full of miracles –
One just, must, be open
To welcome them in.

I am a dreamer.
That is who I am.
Every word, every thought, every sentence,
Smile, leap, goal, exchange – I am a dreamer.

I have many dreams. Each dream comes from each spirit, each tree, and each good night’s sleep.

And I work towards my dreams every day. Small thoughts, small motions – I am “The Little Engine That Could . . .”

It only took 38 years to figure that out.

A professor of mine told me once, “You don’t know what you truly think until you write it out. Flush it out. See where your mind takes you.” You have to let it find you.

The closer you are knowing and understanding your thoughts, the closer you are to understanding yourself.

Many teachers
Many gifts –

For my class we had to write a his Villanelle style poem where certain verses repeat and exchange. A challenge to write. It started out at a completely different place from where it ended, an insert:

“Resistance concedes, accepts its lot
Why can’t it be?
I am a dreamer, confine me not.

Let those old words crack and rot,
My breath, my being – free
Resistance concedes, accepts its lot.

Snap, cut the old noose on that knot,
Time to stretch new roots below that tree.
I am a dreamer, confine me not.

With a new afterthought –
That you always could, you just needed to believe –
Resistance concedes, accepts its lot.
I am dreamer, confine me not.”

And I hope I always aspire to be.
As I hope you will always aspire to work towards
Your beautiful dreams.

This is one of the sweetest and brilliant ideas I have ever seen, quite fitting since Mother’s Day was just yesterday:

http://littlelotusbaby.com/pages/watch-our-video/

Work Cited:
Little lotus. 2015. http://www.littlelotusbaby.com.